What is Camp Spirit? Camp Spirit is a Colorado Winter Adventure Camp for children with one of the most severe forms of EB.  It was started in 2008 for children ages 9 – 18 to give them the opportunity to enjoy winter activities in a safe environment.   It is located in Granby at the YMCA of the Rockies/Snow Mountain Ranch, in the beautiful Colorado Mountains. Dates for the 2017 Camp Spirit are Sunday March 5th thru Thursday March 9th Activities include... Skiing on bi-skis Dog Sled ride Snowmobiling learning meditation techniques Crafts Games Sleigh Ride and Marshmallow roasts Music Making new and lasting friendships March 5th to March 9th 2017!

 

© Camp Spirit 2012/2013/2014/2015/2016/2017 
Camp Spirit is Free to Participants: The camp is funded through the Childrens Hospital Colorado Foundation, EB Family Assistance Fund.  There are also some scholarships for airfare when needed by the campers.
What is Epidermolysis Bullosa (EB)? EB is a genetic disease that affects the collagen (protein) that binds the layers of skin together.  Children who are born with EB, do not have the “roots and glue” that anchor these layers and any trauma can create blisters and sores.  The incidence of EB is 1/20,000, so it is a relatively rare disease.  It is usually diagnosed at birth since babies are often born with blisters and sores. There are different types of EB depending on which layers of skin are involved; Simplex, Junctional and Recessive Dystrophic.   One of the most severe form is Recessive Dystrophic EB (RDEB).  Children with EB are often called “Butterfly Children”  because their skin is so fragile.  EB is a very expensive disease.   Children and adults require specialized dressings that do not stick to the wounds and they must use power wheelchairs or scooters to get around because of pain when walking and contractures of joints. The camp is operated in partnership with the National Sports Center for the Disabled (NSCD)

Welcome To Camp Spirit

Camp Spirit

"This was a life changing experience for me". Tony

Working Together
&
What is Camp Spirit? Camp Spirit is a Colorado Winter Adventure Camp for children with one of the most severe forms of EB.  It was started in 2008 for children ages 9 – 18 to give them the opportunity to enjoy winter activities in a safe environment.   It is located in Granby at the YMCA of the Rockies/Snow Mountain Ranch, in the beautiful Colorado Mountains. Dates for the 2017 Camp Spirit are Sunday March 5th thru Thursday March 9th Activities include... Skiing on bi-skis Dog Sled ride Snowmobiling learning meditation techniques Crafts Games Sleigh Ride and Marshmallow roasts Music Making new and lasting friendships March 5th to March 9th 2017!

 

© Camp Spirit 2012/2013/2014/2015 
Camp Spirit is Free to Participants: 	 The camp is funded through the Childrens Hospital Colorado Foundation, EB Family Assistance Fund.  There are also some scholarships for airfare when needed by the campers. Home Home About About Events Events Forms Forms Gallery Gallery Gallery-a Gallery-a Contact Contact Donate Donate
What is Epidermolysis Bullosa (EB)? EB is a genetic disease that affects the collagen (protein) that binds the layers of skin together.  Children who are born with EB, do not have the “roots and glue” that anchor these layers and any trauma can create blisters and sores.  The incidence of EB is 1/20,000, so it is a relatively rare disease.  It is usually diagnosed at birth since babies are often born with blisters and sores. There are different types of EB depending on which layers of skin are involved; Simplex, Junctional and Recessive Dystrophic.   One of the most severe form is Recessive Dystrophic EB (RDEB).  Children with EB are often called “Butterfly Children”  because their skin is so fragile.  EB is a very expensive disease.   Children and adults require specialized dressings that do not stick to the wounds and they must use power wheelchairs or scooters to get around because of pain when walking and contractures of joints. The camp is operated in partnership with the National Sports Center for the Disabled (NSCD)

Welcome To Camp Spirit

Camp Spirit

"This was a life changing experience for

me". Tony

Working Together
&